I’m sorry I’ve been not available for a few weeks. My mom became increasingly unable to eat her food properly over the last few months, and as we hit September, started to refuse food or drinks of all kinds. This was not unexpected as her Huntington’s Disease progressed, but it really threw me emotionally when her nursing home confirmed we were at that point.

Around two weeks ago, I was asked if I wanted to consider a feeding tube for her, and given that she had known this was a possibility and made her opinion on the matter VERY clear, I said “No.”

I was able to use her Neurocare Unit room as a hospice of sorts, as we settled in for 7 days of her refusing food and fluids, and only saying yes to medication for her pain. She was very focused and peaceful through most of it. It was obviously a very difficult time, but I am honored to have been able to fulfill the promise I made to give her a comfortable death with family at her side when she chooses to let her life be done. My mother passed away last Friday at 11:35 pm, at the age of 66. My journey with her had many highs and lows, but my love had no limits.